So we’ve had a bumpy few days …  For starters Andrew was scheduled for his 2nd surgery on Thursday the 25th to have his blockage repaired and have his PD CATH ( the tube used for dialysis ) inserted.  Wednesday night while Josh was giving Andrew his 5pm feeding the pediatric urologist came in and canceled it ! Andrew had, had an ultra sound the day before on his kidneys and the right one had improved a bit since the last time ( which was about 8 days ago ) so he decided he wants to wait a little longer.  He has more faith in the organs ability to rebound than does our nephrologist who is still pushing to have the PD CATH inserted so that we may begin dialysis.  Having the 2 of them be at odds with each other has added a whole nother level of stress which I haven’t the energy to even get into at the moment, however as parents we’re much more comfortable with our pediatric urologists conservative approach to Andrew’s care versus the nephrologists aggressiveness …

Wednesday night I went to congratulate my precious boy on escaping surgery for the 2nd time … We high fived, I gave him a bath, washed his hair, changed his diaper …   He was so happy he even ate his ENTIRE BOTTLE for me, a first of which I was SO EXCITED about !!!!!  I sang him to sleep and left feeling positive and encouraged.

Imagine my disappointment Thursday morning when we learned that sometime early that morning it was discovered that Andrew was given a faulty PIC LINE.  Apparently there was a manufactures defect ( and of course my son was lucky enough to have had received it ) and it started leaking so they had to pull it out.   He had to be sedated so they could TRY and replace it … they couldn’t.  They tried again today  … again unsuccessfully. So for 2 days in a row our little Andrew has been sedated and poked. Because his kidneys have a hard time getting rid of waste it takes him much longer than other babies to recover from the medication which means I’ve barley seen him the past few days …    Apparently their going to give him until Monday to recover before they try again   BTW, his catheter also came out last night …  so they had to replace that twice as well. His night nurse tried, but when I went to check on him this morning before his second PIC LINE attempt I changed his diaper and noticed urine leaking out from around the catheter  … she used the wrong size, so they were going to replace that while he was sedated this afternoon.  I need to remember to ask about that tomorrow …

All of this sucks … It felt like we were making such progress and now it seems we’ve taken 3 steps back.   My stomach has been sick with worry, I haven’t slept well the past few nights …  I’m SO READY for all of this to be a distant memory …