Random people have been harassing me to update my blog , so since I have like 3 more minutes before Emma starts using me as her own personal jungle gym and Andrew wakes up wanting to eat I thought I’d give a quick update …

His latest labs were so good we were given one day off a week of dialysis, YAY !!  May not seem like much , but that’s like one day a week that my mom can watch BOTH kids so Josh and I can have some alone time, or better yet so I can take a nap or get my nails done or run lame errands and not have to be in a big rush to get home by a certain time.  On the other hand we have to learn how to catheterize him …. BOOOOOOO.   I’m absolutely not looking forward to it at all.  His urologist hasn’t been very clear about why or how long, so I’m not really sure what to make of it.  I do know that the kid pees a lot, so I’m not sure what good this is going to do.

We had a good apt with his pediatrician today …  she had to draw blood.  I couldn’t be in the room, so I sat in the lobby while Josh stayed with him.  I am that big of a baby , plus she talked about having to draw blood from a vein in his HEAD. NOT COOL.  Thank God she took her time and found a tiny vein in his wrist that turned out to be very juicy ! Poor Andrew … like being pinned down by 3 nurses wasn’t enough, he was then stuck with 3 needles in his thighs as to start his vaccination process.

I have a TON to be grateful for tomorrow …  mainly Andrews life.  He truly is a Miracle.

Happy Thanksgiving !

We’re HOME !!!!  We finished our 2 weeks of dialysis training Monday Nov. 3rd , so we are now unofficially   officially dialysis nurses ! I’ll add that hat to the many others we moms seem to wear ! You know, cook, maid, babysitter, cab driver, grocery-go-getter, dialysis nurse …

We really did recieve diplomas that state ” Childrens Hospital Los Angeles certifies that I Hannah, and Josh got his own, have successfully completed a course of study in CAPD/CCPD ( a fancy way of saying home dialysis)  on Andrew  !    So we loaded in the car, among the rest of our crap, a home dialysis machine and the MANY necessary medical supplies needed to get us started until Baxter ( our medical supplier ) can deliver our monthly supply. 

As anxious as I was to come home, I was also a little nervous to be leaving our security net behind.  The Dialysis nurses at the hospital were there to catch every little mistake we made  ( and believe me , the process is NOT easy, and there’s plenty of opportunity to make mistakes while connecting and disconnecting Andrew to his machine, only it’s not like “Opps, I missed a step, it’s “Oh, crap I forgot to shut the window before connecting him and now his “peritoneal cavity” is infected which is SUPER painful and could earn us a hospital stay.  Oh, so much for my exhausted brain to remember …

Anyways, I wanted to give a little update …   everyone’s been bug’n me to update my blog !  I’ll get back to it on a more regular basis once we get settled.  Right now, I’m just trying to figure out how to parent 2 kids and find time to shower !