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We’re HOME !!!! We finished our 2 weeks of dialysis training Monday Nov. 3rd , so we are now unofficially officially dialysis nurses ! I’ll add that hat to the many others we moms seem to wear ! You know, cook, maid, babysitter, cab driver, grocery-go-getter, dialysis nurse …

We really did recieve diplomas that state ” Childrens Hospital Los Angeles certifies that I Hannah, and Josh got his own, have successfully completed a course of study in CAPD/CCPD ( a fancy way of saying home dialysis) on Andrew ! So we loaded in the car, among the rest of our crap, a home dialysis machine and the MANY necessary medical supplies needed to get us started until Baxter ( our medical supplier ) can deliver our monthly supply.

As anxious as I was to come home, I was also a little nervous to be leaving our security net behind. The Dialysis nurses at the hospital were there to catch every little mistake we made ( and believe me , the process is NOT easy, and there’s plenty of opportunity to make mistakes while connecting and disconnecting Andrew to his machine, only it’s not like “Opps, I missed a step, it’s “Oh, crap I forgot to shut the window before connecting him and now his “peritoneal cavity” is infected which is SUPER painful and could earn us a hospital stay. Oh, so much for my exhausted brain to remember …

Anyways, I wanted to give a little update … everyone’s been bug’n me to update my blog ! I’ll get back to it on a more regular basis once we get settled. Right now, I’m just trying to figure out how to parent 2 kids and find time to shower !

Keeping Track

12 Comments so far

so glad your getting on well, I have been checking everyday waiting to hear from you, i did ask my cousin Kim , so chuffed all is well, our thoughts and wishes are you with all.Love Teresa in U.K
xx

I’m so happy that you guys are home, finally! I was riddled with anxiety wondering if you guys were alright. I’m relieved to see that you are. Post some pictures of the little guy when you get a chance! Love ya, Jess

Glad to hear that you’re home. But I know it’s kind of scary to leave the hospital. I felt that way with the twins and we weren’t dealing with anything more serious than getting them to each (they would eat barely anything and then spit it all up). I don’t remember showering for the first year that we have a toddler and two newborns in the house… I suppose I must of…but I don’t think it was a priority…

Welcome Home Hannah and Family. What a blessing.

Amy

I am so happy to hear that you guys are finally home! If you need anything… just call me Nurse Lindsay

YAY! It was SO awesome to see you on Thursday! Andrew looks amazing. He’s ridiculously adorable and ANYTIME you need me to come over for an hour so you can shower, or nap, let me know. I’m here to help! And I know Dylan wouldn’t mind the opportunity to play with Emma!

You’re an awesome mom and once you get back into a routine, life will flow along easily…

Welcome back home! We’re glad you’re here!!! I too will offer my time to come over and watch Andrew while Coop plays with Emma – for you to shower or whatever. Today, Cooper was saying, “Emma?!?!?”, so I told him that I’d call you anyway.

Hi there… a friend guided me to your site in the hopes that you might have another resource to go to.
My daughter was born with severe brain damage and complete renal failure due to a placental abruption. At 15 months she received a kidney transplant and we just brought her home for the first time in June (at 16+months old). We did peritoneal dialysis for months and ended up on hemodialysis. We have become experts on it all at this point.
I just wanted to reach out and let you know that I am here if you need anything, have any questions or just want to vent about the frustrations of being a mom and a nurse along with all of your other responsibilities.

My daughter (Raegan) has a site that will tell you more about her journey.

http://www.caringbridge.org/visit/babyraegan

Hope to hear more good updates!

Layne Lombardi

So glad you guys are home safe Hannah.

Hannah,
I am so glad that you are all home.I have and will continue to keep your little guy and your whole family in my prayers. Please let me know if there is anything I can do to help you. Take Care

Hi Hannah…I am so glad you guys are home now. I have to tell you that you have a real gift for writting blogs. I sat down and read the whole story in a couple of hours. Please let us know if you guys need anything. You guys are constantly in our thoughts and prayers.
Take Care
Luz

Glad you’re home… and hope he gets better soon.

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