Since my last post you should all be happy to hear that I’ve found time to shower !  It’s eating I never have time to do , I do manage to make my coffee in the morning however ! Ahhh, priorities !

I’m not sure how current I am on Andrew , but I think the only thing that’s changed recently is that I have to cath him every 4 hours.  It was horrible at first … I was scared and nervous and it was just another thing for me to be responsible for( because for whatever his reason, this is something the husband won’t do ), but now Im quite good at it !  I swear I feel like I’m in the fast lane of self realization !  Every time we learn yet another thing we’ll have to do I totally freak out and have these major tantrums and completely reject it with every fiber of my being and then a few hours later … sometimes days, when I’ve had time to let it all sink in, I tend to treat this all like one big challenge !  So now when I cath him, it’s all about how much urine I can get out !  Yep …. that’s my life these days, once upon a time I’d been excited over new make-up, shoes, fun fashion forward jewelry …  today, I’m over joyed if I can squeeze out more than 10cc’s of baby urine !  In case your wondering why I have to cath him , he has something called hydronephrosis.  I think basically Andrews bladder is small, there fore not able to hold a “normal” amount of urine plus he has some scar tissue around his bladder caused by the blockage he had when I was pregnant with him so he can’t completely empty it so as a result it travels backwards up into his ureters which then dilates his kidneys and that can cause him to loose what little function he has left.   I know that was a crap load to try and understand … so just know that he had another sonogram 2 weeks ago and since cathing him things have improved !  Our urologist is hoping that if we continue, that over time his bladder with heal itself … fingers crossed !

So now my daily tasks include giving him medication every 12 hours, shots twice a week, cathing him every 4 hours, finding time to take his blood pressure, weigh him, get his dialysis machine set up ( takes about 20 minutes ) then getting him hooked up and started … dialysis takes 7 hours start to finish by the way.  While doing all of these things he has all of his other normal 4 month old needs to be taken care of , not to mention my Emma and all of the many things she needs !  Speaking of Emma, she started pre school on the 5 of this month !! She goes 2 half days a week, which she seems to be enjoying ! Those are fun mornings, let me tell ya ! I have to have us all up and fed and ready and out the door by 8:20am !  It surprises me every time we’re out the door on time !

In a good month we only have to drive to LA’s Children Hosp. once.  But of course it’s never that easy to schedule our apts all on the same day, so on the 29th of Jan it will be our 3rd time going.  Those are the LONGEST days EVER.  

Well, that’s about all I have time for … I’m going to try and find more time to blog, I totally miss it, life is just completely overwhelming for the moment, so I’ll do the best I can …

Now I must get back to coloring “pinkie pie” … she’s a My Little Pony , DUH !!!